myC – my Cancer my Concern Infographics
What is the myC Project?
Launched in 2022, myC (my Cancer my Concern) is a Cancer Patients Europe (CPE) initiative that aims to raise awareness of the benefits and values of genomic testing in cancer, educate patients and stakeholders, and improve accessibility to genomic testing across Europe. TheGenomics and Breast Cancer European Patients Survey is the first step of the myC initiative and part of CPE’s broader goal to improve the management of cancer for patients across Europe.
Some of us will benefit from genomic testing.
All of us can help.
Survey Infographic Topline results
KEY FINDING
4 out of 5 breast cancer patients eligible for genomic testing were not told it was available to them.
1,383
respondents completed the survey in 5 countries.
50%
eligible for genomic testing
83%
with breast cancer
65%
aged 40-59
A LACK OF AWARENESS OF GENOMIC TESTING
59%
had not heard about personalised or precision medicine.
55%
did not know the difference between genetic and genomic testing.
63%
had not heard about genomic testing in cancer.
Of breast cancer patients eligible for genomic testing…
PATIENTS NEED MORE MEDICAL INFORMATION
49%
either did not find or only sometimes found the information they needed in a way that they could understand.
Medical professionals and the internet were top sources of medical information.
During their breast cancer journey, patients would have liked more information on:
Survey Infographic Topline results – France
KEY FINDING – FRANCE
4 out of 5 breast cancer patients eligible for genomic testing were not told it was available to them.
633
respondents completed the survey in France.
94%
with breast cancer
50%
eligible for genomic testing
67%
aged 40-59
A LACK OF AWARENESS OF GENOMIC TESTING
68%
had not heard about personalised or precision medicine.
51%
did not know the difference between genetic and genomic testing.
67%
had not heard about genomic testing in cancer.
Of breast cancer patients eligible for genomic testing…
PATIENTS NEED MORE MEDICAL INFORMATION
47%
either did not find or only sometimes found the information they needed in a way that they could understand.
Medical professionals and the internet were top sources of medical information.
During their breast cancer journey, patients would have liked more information on:
Survey Infographic Topline results – Germany
KEY FINDING – GERMANY
4 out of 5 breast cancer patients eligible for genomic testing were not told it was available to them.
249
respondents completed the survey in Germany.
81%
with breast cancer
54%
eligible for genomic testing
69%
aged 40-59
A LACK OF AWARENESS OF GENOMIC TESTING
57%
had not heard about personalised or precision medicine.
60%
did not know the difference between genetic and genomic testing.
67%
had not heard about genomic testing in cancer.
Of breast cancer patients eligible for genomic testing…
PATIENTS NEED MORE MEDICAL INFORMATION
53%
either did not find or only sometimes found the information they needed in a way that they could understand.
Medical professionals and the internet were top sources of medical information.
During their breast cancer journey, patients would have liked more information on:
Survey Infographic Topline results – Italy
KEY FINDING – ITALY
3 out of 5 breast cancer patients eligible for genomic testing were not told it was available to them.
146
respondents completed the survey in Italy.
64%
with breast cancer
41%
eligible for genomic testing
65%
aged 40-59
A LACK OF AWARENESS OF GENOMIC TESTING
47%
had not heard about personalised or precision medicine.
43%
did not know the difference between genetic and genomic testing.
43%
had not heard about genomic testing in cancer.
Of breast cancer patients eligible for genomic testing…
PATIENTS NEED MORE MEDICAL INFORMATION
54%
either did not find or only sometimes found the information they needed in a way that they could understand.
Medical professionals and the internet were top sources of medical information.
During their breast cancer journey, patients would have liked more information on:
Survey Infographic Topline results – Spain
KEY FINDING – SPAIN
4 out of 5 breast cancer patients eligible for genomic testing were not told it was available to them.
146
respondents completed the survey in Spain.
77%
with breast cancer
41%
eligible for genomic testing
60%
aged 40-59
A LACK OF AWARENESS OF GENOMIC TESTING
35%
had not heard about personalised or precision medicine.
55%
did not know the difference between genetic and genomic testing.
63%
had not heard about genomic testing in cancer.
Of breast cancer patients eligible for genomic testing…
PATIENTS NEED MORE MEDICAL INFORMATION
49%
either did not find or only sometimes found the information they needed in a way that they could understand.
Medical professionals and the internet were top sources of medical information.
During their breast cancer journey, patients would have liked more information on:
Survey Infographic Topline results – United Kingdom
KEY FINDING – UK
4 out of 5 breast cancer patients eligible for genomic testing were not told it was available to them.
209
respondents completed the survey in UK.
70%
with breast cancer
54%
eligible for genomic testing
55%
aged 40-59
A LACK OF AWARENESS OF GENOMIC TESTING
60%
had not heard about personalised or precision medicine.
60%
did not know the difference between genetic and genomic testing.
60%
had not heard about genomic testing in cancer.
Of breast cancer patients eligible for genomic testing…
PATIENTS NEED MORE MEDICAL INFORMATION
45%
either did not find or only sometimes found the information they needed in a way that they could understand.
Medical professionals and the internet were top sources of medical information.
During their breast cancer journey, patients would have liked more information on: