On the 26th and 27th of June, CPE and 13 partners from the QUALITOP consortium, gathered in Amsterdam for an event focusing on the advancements and challenges in clinical trials and quality-of-life research. The two-day event brought together leading experts and researchers to share insights, discuss obstacles, and showcase innovative solutions aimed at enhancing the quality of life for cancer patients.
Conference: Innovations and Insights in Patient Care and Clinical Research
During the conference, participants discussed various challenges, such as difficulties in data collection during the pandemic and patient recruitment for surveys, and presented innovative solutions, including a multi-language European patient survey. The results section featured presentations on determinants of quality of life, the impact of immune checkpoint inhibitors, and the use of simulation modelling to understand treatment dynamics.
The event also featured a demonstration of a smart digital platform by the Scientific Academy for Service Technology EV, Université Lyon 1 Claude Bernard, and the University of Calabria. The platform aims to benefit patients and clinicians by providing a comprehensive tool for tracking and improving quality of life. This session included perspectives from patients, offering firsthand accounts of their experiences with clinical trials and treatments.
The conference ended with a call for continued collaboration, innovation, and patient-centred approaches in advancing clinical research and improving patient quality of life, marking the event as a resounding success.
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Project Workshop on Sustainability and Continuity
In parallel with the conference, a final workshop of the QUALITOP project was held, bringing together project members and patient advocates to discuss the project’s successes and sustainability. This workshop, moderated by Josephine Mosset, Cancer Patients Europe’s Policy Officer, focused on overcoming challenges and maintaining datasets for future use.
The workshop was a crucial moment to reflect on the project’s achievements and challenges, share insights, and brainstorm ideas for ensuring its long-term sustainability. Key topics included the project’s use of big data, artificial intelligence, and simulation modelling to improve patient care. Discussions identified issues such as delays in data integration and communication, proposing solutions like increased patient involvement and effective communication. The team also explored funding strategies to ensure QUALITOP’s financial stability. The workshop concluded with participants expressing renewed dedication to continued innovation and collaboration.
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Click to learn more about the QUALITOP EU project.
